fibromuscular dysplasia support, education & advocacy
Fibromuscular dysplasia (FMD) is a complex disease that is most commonly seen in women, with systemic presentation that may include stenosis, aneurysm or dissection most commonly in the renal and carotid arteries, migraine-like headaches, dizziness, and tinnitus or a swooshing sound in the ears. Low bone density, joint laxity and degenerative disease in the spine also have been linked to the disease. FMD is considered a rare disease; however, it is also believed to be underdiagnosed.

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About

Until it ceased operations on  May 18, 2022 FMD Chat was a 501c3 organization creating an international network of peer-to-peer connections for patients, caregivers and healthcare providers with the aim to improve the quality of life for those affected by fibromuscular dysplasia within this lifetime.

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Affiliations
FMD Chat was  a member of Global Genes, Rare Disease UK; and an associate member of EURORDIS, a non-governmental patient-driven alliance of patient organisations representing 544 rare disease patient organisations in 49 countries covering more than 4,000 diseases. FMD Chat worked in partnership with Smart Patients, RareConnect, NeedyMeds prescription drug discount card program and the Coordination of Rare Diseases at Sanford registry program, which provides a free, online registry for all rare disease patients. FMD Chat was not affiliated with FMDSA.
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