fibromuscular dysplasia support, education & advocacy
Fibromuscular dysplasia (FMD) is a complex disease that is most commonly seen in women, with systemic presentation that may include stenosis, aneurysm or dissection most commonly in the renal and carotid arteries, migraine-like headaches, dizziness, and tinnitus or a swooshing sound in the ears. Low bone density, joint laxity and degenerative disease in the spine also have been linked to the disease. FMD is considered a rare disease; however, it is also believed to be underdiagnosed.

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Support FMD Chat

FMD Chat gratefully recognizes the individuals who have demonstrated loyal support and whose continuing generosity has provided patients and caregivers with sense of community through their financial contributions and commitments. By becoming a FMD Chat donor, these individuals have established themselves as compassionate leaders with a focus on improving the lives of those affected by fibromuscular dysplasia.

You too can make a difference! Your donations make it possible for FMD Chat to continue to advocate, educate and support. There are many ways to support FMD Chat.

Whether you wish to make a one time contribution or set up a recurring donation, it's easy to give through PayPal.

Connect with FMD Chat and other nonprofit organizations through GuideStar, an organization that collects and disseminates information about every nonprofit organization registered with the IRS.

Every time you shop at any of the 1,000+ online stores in the iGive network, a portion of the money you spend benefits FMD Chat. You'll never pay more when you reach a store through iGive. In fact, smart shoppers will enjoy iGive's repository of coupons, free shipping deals and sales.

When you shop at, you’ll find the exact same low prices, vast selection and convenient shopping experience as, with the added bonus that Amazon will donate a portion of the purchase price to FMD Chat.

Show that you're a survivor with Bravelet's unique accessories for women and men. From each purchase made through FMD Chat's page featuring specially chosen colors, $10 is donated to FMD Chat.

Help FMD Chat raise awareness of fibromuscular dysplasia and keep a piece of the organization close to you with logo wear and other useful items available through CafePress.

"I just wanted to say thank you all for your support. Reading these posts when I was first diagnosed, I understood the importance of getting a good blood pressure cuff. Because I had a good blood pressure cuff, I got to the hospital and got meds before a major issue occurred. Two days in the hospital and two BP meds later, I'm home with my family. I now have a surgical consult with my vascular surgeon. So this group literally saved my life. Thank you!" — Stephanie M.

"In 1994 I was diagnosed with FMD. I spent 20 years alone without a support community. FMD Chat gave me a safe harbour to share my disease with people who understand. Chat gives so much for so many and asks nothing. I am forever grateful for the advice, support and compassion I have received." — Elizabeth G.

"FMD Chat is the sanity safety net that catches me each time I think I'm about to emotionally free fall due to the stresses of this disease. I am so thankful for the opportunity to have both lighthearted conversations as well as serious symptom discussions there." — Rebecca J.

"FMD is still being defined and little is understood within the medical field. Most physicians will acknowledge FMD exists, but few are able to diagnose it and even fewer have an interest in learning more about it. Patients and their caregivers experience frustration, confusion and uncertainty. There comes a need for balance and support, which I've found in the FMD Chat Caregivers Only Group. Talking to one another helps caregivers be the pillars, stabilizers, and balancing factors in the life of the FMD patient." — Doug K.

Leanne Russell
Victoria Gabbard*
Sarah Kucharski*

Larry Chu
Patti Jackson
Fran Saplis
Kellie Smiddie
Anne Karmon
Kari Ulrich
Melissa Hicks
Leanne Russell
Kara Bryant*
Georgette Hegarty*
Victoria Gabbard*
Neide Carneiro*

Kari Ulrich
Anne Karmon
Nidhi Subbaraman
Pop Culture
Veronique Greenwood
Jack O'Connell
Patti Leake (*)
Sarah Kucharski (*)
Glenda & Richard Kucharski
Nick Dawson
Larry Dolin
Neide Caneiro (*)
Elizabeth Apple
Heather Boyd
Judy Brown
Deidre Powe
Amanda Singletary
Katherine Soller
Elizabeth Bradey
Pear Health
Amanda Singletary*
Victoria Gabbard*
Emelita Wieczorek*

*indicates supporter contributing through iGive or AmazonSmile

In June 2012, FMD Chat became the first patient-driven project on MedStartr, the world's first crowdfunding platform dedicated solely to medical projects. FMD Chat wasn't like other MedStartr projects. FMD Chat didn't promise a return on investment. FMD Chat didn't offer some new gadget that would change medicine forever. FMD Chat sought funding to connect patients, family members, friends, healthcare providers—all those affected by fibromuscular dysplasia—in a global, peer-to-peer support network based on social media. 

Using social media, FMD Chat closes the physical and cultural differences among patients across continents. Patients from the United States, Australia, Brazil, Canada, Germany, Norway, South Africa, Sweden and other countries have come together to support one another, discuss symptoms and side effects, help prepare for surgery, develop questions to ask their doctors and more. The global connection the FMD Chat facilitates helps ensure patients share and learn from a variety experiences.

FMD Chat also reaches out to the general public and medical community by sharing stories form diagnosed patients who best explain what it means to live with FMD. FMD Chat provides medical readings and international resources to help raise awareness and understanding of the disease, which all to often takes years to diagnose, is misdiagnosed, or never diagnosed at all.

Thanks to the overwhelming generosity of FMD Chat's supporters, it took FMD Chat only until Sept. 7, 2012 to meet its MedStartr goal, allowing FMD Chat to take the next steps necessary in order to grow. “People want emotional support from their peers,” says Susannah Fox, associate director of the Pew Internet and American Life Project, author of a survey of 3,001 adults in the general population and 2,156 members of the National Organization for Rare Disorders. "The rare disease communities show that people are ready and willing to share with each other so that other people can benefit from their experiences.” 

We are ready; we are willing, and we are thanking the following for sharing, so that others may benefit. 

Ileana Balcu
Brett Berliner
Lisa Fields
Ross Martin
Nora Miller
Casey Quinlan
Amanda Singletary
Mary Casey Sturk
Whitney Burton
Heather O. Hayes
Ed Kelley
Haeley Franklin
Marilyn Mann
Jackson Bebber
Alex Fair
Katherine Leon
Kim Whittemore
Edna Ohrbom
Heather Rowell